NUMB3RS...
I was warned.
When I signed up for my mission with Doctors Without Borders friends advised me that the administrative and management responsibilities would consume me. Time with direct patient contact would be limited.
Then, the first ART (Anti-Retroviral Therapy) Report needed to be prepared for Bhamo. Each patient’s clinical course on ART, since the start of our program, needed to be documented and analyzed. I debated whether to pass the task onto the unsuspecting Expat coming to replace me in a month or so, or to bear the inevitable frustration of trying to make sense of files from years ago.
As I dug deep into the patient charts, gaps in filing and record keeping were uncovered. Slowly, painstakingly, I corrected and updated our database. At the end of my mission, this unexpected and time-consuming report occupied most of my time and sidetracked my scheduled final activities here.
Week after week I poured over compliance, record keeping, clinic procedures and protocol, trying to put together a coherent report.
While in the clinic, between hunting and gathering ancient charts, a shopkeeper with AIDS was consulted. Polite and appreciative, he initially responded well to treatment and he took his medication regularly, though he did not follow his doctor’s advice to rest.
Our patient was frequently seen selling his wares at a local market festival into the early morning hours. The doctors insisted he slow his pace but mere words could not keep him from enjoying every minute of the festival, given his return to relative health.
His progress faltered.
We adjusted, then maximized his medication. Though he seemed to be getting by in his own way, we prepared him for skin scrapings, blood tests and a lumbar puncture.
Then his family requested a home visit.
Unexpectedly, his condition had deteriorated to the point that he was unrecognizable as the person I had seen days before. In a backroom behind his store, surrounded by relatives, we struggled to examine him in his delirium.
Following transfer to the MSF clinic, we had no more success and could not secure an intravenous line. He slipped into a coma. A careful discussion with his family followed, reviewing his limited options while respecting our patient’s privacy regarding his diagnosis.
A transfer to the relatively well-equipped Bhamo Hospital could offer this patient nothing more and would only drain the family of whatever financial resources they had. Focusing on comfort measures, the patient returned home to his family, with a promise we would support them with homecare as the days progressed.
The next day we received word that he passed away, at home, a few hours after leaving the clinic.
As I returned to the ART report, the tedium of sorting through old charts and tracking down missing information seemed more relevant. Between the lines of symptoms and diagnoses, the charts of patients I’d never seen developed personalities, families and tragic stories not to be forgotten.
I was warned.
When I signed up for my mission with Doctors Without Borders friends advised me that the administrative and management responsibilities would consume me. Time with direct patient contact would be limited.
Then, the first ART (Anti-Retroviral Therapy) Report needed to be prepared for Bhamo. Each patient’s clinical course on ART, since the start of our program, needed to be documented and analyzed. I debated whether to pass the task onto the unsuspecting Expat coming to replace me in a month or so, or to bear the inevitable frustration of trying to make sense of files from years ago.
As I dug deep into the patient charts, gaps in filing and record keeping were uncovered. Slowly, painstakingly, I corrected and updated our database. At the end of my mission, this unexpected and time-consuming report occupied most of my time and sidetracked my scheduled final activities here.
Week after week I poured over compliance, record keeping, clinic procedures and protocol, trying to put together a coherent report.
While in the clinic, between hunting and gathering ancient charts, a shopkeeper with AIDS was consulted. Polite and appreciative, he initially responded well to treatment and he took his medication regularly, though he did not follow his doctor’s advice to rest.
Our patient was frequently seen selling his wares at a local market festival into the early morning hours. The doctors insisted he slow his pace but mere words could not keep him from enjoying every minute of the festival, given his return to relative health.
His progress faltered.
We adjusted, then maximized his medication. Though he seemed to be getting by in his own way, we prepared him for skin scrapings, blood tests and a lumbar puncture.
Then his family requested a home visit.
Unexpectedly, his condition had deteriorated to the point that he was unrecognizable as the person I had seen days before. In a backroom behind his store, surrounded by relatives, we struggled to examine him in his delirium.
Following transfer to the MSF clinic, we had no more success and could not secure an intravenous line. He slipped into a coma. A careful discussion with his family followed, reviewing his limited options while respecting our patient’s privacy regarding his diagnosis.
A transfer to the relatively well-equipped Bhamo Hospital could offer this patient nothing more and would only drain the family of whatever financial resources they had. Focusing on comfort measures, the patient returned home to his family, with a promise we would support them with homecare as the days progressed.
The next day we received word that he passed away, at home, a few hours after leaving the clinic.
As I returned to the ART report, the tedium of sorting through old charts and tracking down missing information seemed more relevant. Between the lines of symptoms and diagnoses, the charts of patients I’d never seen developed personalities, families and tragic stories not to be forgotten.
Labels: AIDS, ART, Doctors Without Borders, HIV, MSF

